Wyatt James Koger, A Fighter from Birth: Say a cheer for Wyatt!!!

Tuesday, January 22, 2008

Say a cheer for Wyatt!!!

I am sitting here by Wyatt's bedside watching him sleep. I must of sounded really down based on my last entry because a few people have e-mailed me some really encouraging words... thank you and I am fine. Wyatt is in good hands and it sounds like we are getting close to a plan. Today so far is an ok day for Wyatt. His oxygen saturation kept de-stating so the docs ordered lasix to remove the extra fluid and a chest x-ray. His heart rate and respiration has increased as well. The feeds have stopped until further results. He is finally sleeping now, so hopefully when he awakes everything will go back to normal (in my perfect Disneyland World). I just heard that Dr. Carson would like to wait for about a month to do the shunt surgery and we would like Wyatt to come in as an outpatient. So the question now is do we do G-tube surgery or wait??? Does he come home with a shift nurse or go to Mt. Wash or stay here???? We'll find out and will do whatever is best for Wyatt.

2 comments:

Anonymous said...: Gina, You really have the best of friends. So many people care about you and love you and Benji. m; January 22, 2008 at 8:24 PM
Vicki Jensen said...: I say THREE CHEERS for Wyatt for tolerating his feeds and being a brave little guy. Just remember that things can happen so fast at Hopkins. I remember so many times having docs tell us "Jack will probably be on the vent for several weeks" and it was more like 6 days! When these kids rally watch out! I can tell that Wyatt's time is near. Just keep doing a great job like you're doing and keeping charge of his care. The family meeting is a great idea to make sure everyone is on the same page. We're praying and rooting for you all from Frederick!
Love
Vic, James & Jack; January 22, 2008 at 9:27 PM

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.