I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Sunday, January 13, 2008
Wyatt's mom is in trouble!!
Wyatt was wide awake and alert for most of the day. I even got a few smiles out of him!! His favorite activity is watching TV, even though I tried to slip in some book reading. Wyatt likes to make his own decisions. Today the nurse said that she had to cover his left hand because he was trying to pull out his repogle tube (ng tube). While I was holding him, I told the nurse that I was going to let his hand free and I'll watch him. Well, about 5 minutes later he pulled the whole thing out with out me even noticing!!! He is so sly!!! The nurse was sweet and laughed and it turns out that the surgeon said we could just leave it out. The only change made today was increasing his nutrition so that he can continue to gain weight even though he is not getting fed. Father Paul came by to visit Wyatt and gave him a blessing. Tomorrow is a big day for him.... he has his swallow study and Dr. Carson will read his CT scan. Lots of prays please. My camera batteries are charging, so pictures from the weekend will be posted tomorrow. Thank you to my cousins Vicki and Jimmy for visiting and Aunt Paula. He also had a visit from my parents.
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1 comment:
We will definitely say a prayer!
Julia
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