I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Thursday, February 7, 2008
Back to Mt. Washington
Today we moved back to Mt.Washington. A solid plan has not been established yet, but I was told he will return back to Hopkins for G-tube surgery in 2-3 weeks. The doctor who performs the swallow study would like to wait a while because she said with Wyatt's high respiratory rate, he would not pass. The PA for neurosurgery, Judy showed me a model of Wyatt's shut. Here are some fun facts- the tubing is coated with antibiotics that will last for 3 months. It's programmable by putting a magnet on his head. Wyatt's cry is a little louder and he seems happier. We could not be happier for him!!!
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2 comments:
Gina,
Thank you for checking out Ned's blog. You can certainly link it to Wyatt's and I will link his to ours tonight. I am so thankful for the success of his surgery today. It sounds like God has carried him through quite easily. I was glad to read and see how Wyatt has been held through his struggles. Ned's CDH surgery went without a hitch and he still has the heart surgery coming up on the horizon. It's funny how I dreaded the CDH ordeal for 6 months and God quickly showed me how easily He could get us through that valley. It is the hope I gained from that experience that I lean on for the heart surgery. What is big to me is nothing to the creator of the universe..... I'm glad I finally took the oportunity to let you know I had been praying for Wyatt so I could get to know you a bit more. My network of believers has grown by leaps and bounds since Ned was diagnosed with CDH. I am thankful that I have had the opportunity to get to know so many people and be included in such genuine love and prayer. Tell Wyatt to keep up the good work!
Back to Mt Washington huh? Boy that kid likes to travel! I hope they give him 'frequent rider' priveledges or something like that ;-)
I'm so glad he's feeling better and the shunt is doing its job. Why are they making him get the G-tube before they know he needs it? Is he just getting too coordinated and will pull out the NG tube?
Do you realize that if he get's that G-tube there's nothing holding him back from going home! Oh boy Oh boy Oh boy!
Vic
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