Wyatt James Koger, A Fighter from Birth: 156 days in the hospital

Friday, March 14, 2008

156 days in the hospital

Wyatt was so happy today and is spitting up MUCH LESS... he also gained a little weight too. I also organized the medications by making a day sheet which has the medications listed by time, amount, and name and we check it off as we give it to Wyatt. I also numbered the bottles and syringes so they will not get mixed up. It makes life much easier! My camera's battery needs to be recharged so I will post pictures soon. Check out Jack's blog... you will see cute little Jack with a message to Wyatt. It's so cute and we thank our friends Vicki and James. You can click on the link on Wyatt's Blog side bar or go here- http://babyjackjensen.blogspot.com/

2 comments:

Anonymous said...: We are so happy for you guys. Home at last, how wonderful. I am sure there is no better feeling than having your family all under one roof. Congratulations!!
Chuck, Sue and Megan; March 14, 2008 at 11:35 PM
Aep said...: Hello,
I am so glad things are going well at home!! I have been following your beautiful story through BOH and your blog. Our son Marco was born on 3.2.07 with LCDH, I just did a blog (pena family)and he has a carepage (marcoluis) that you are welcome to visit!
Just wanted to say that we will keep praying for you guys!! Keep growing Wyatt!!
Hugs,
Ana and Marco; March 15, 2008 at 1:21 PM

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.