I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Thursday, March 27, 2008
Cardiologist appointment
Today Wyatt had his cardiologist appointment at Hopkins... they took an EKG and did an Echo cardiogram of his heart while he watched Baby Einstein. Wyatt was so well behaved and looked all around. The appointment took several hours, but when we were finished, Wyatt's cardiologist said we never have to come back!!! One thing Wyatt has is a good heart! The duct that was open is now closed, there is no fluid or pressure around the heart and he even has an extra Vena Cava (vein going into his heart) on the right side which connects to the original. It's not bad or good.... well I guess it's good for his central line, since they had another vein for access. So Wyatt got the clean bill of health and off we went. He also had a bath today and all the oxygen tubing was changed. The doctor who was present while he was placed on ECMO came by to visit and was very impressed with his progress. She was the doctor who came into the labor and delivery room shortly after I gave birth saying they needed to put Wyatt on ECMO and gave me all the consent forms to sign.... an unforgettable moment. Check out Baby Sofia's blog- she just had her repair surgery is it was successful!
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1 comment:
Yay Wyatt! Of course he has a good heart! How could he not with such a loving sister and parents :)
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