Wyatt James Koger, A Fighter from Birth: WEAR TURQUOISE ON MONDAY in honor of all the CDH babies!

Saturday, March 29, 2008

WEAR TURQUOISE ON MONDAY in honor of all the CDH babies!

Monday, March 31st is CDH Awareness Day... in honor and support of all the CDH babies wear turquoise. Also on Monday, Jack's parents are hosting a blood drive in honor of Jack in Federick. You can always catch a ride with me, if you live close by.

Today Benji and I divided and conquered. Chloe and I had a mother/daughter day and Wyatt and Benji had a father/ son day. Chloe and I attended two birthday parties. The first party was a Pirate Picnic at my college friend, Laura's house. It was a great party and Laura always thinks of the little details. Then off to the next party for our neighbor, Savannah. It was at GymJam and Chloe had a great time!

Wyatt had a bath today and was happy for most of the day because he got to play with his Dad all day. Tomorrow, Chloe's friends Lily and Molly are coming over for a playdate, so Wyatt will be surrounded by the ladies... which he loves:)))

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.