Wyatt James Koger, A Fighter from Birth: A day with Gran and Grandad!

Saturday, March 1, 2008

A day with Gran and Grandad!

My sister got married in Japan last weekend and she posted pictures on her blog... check them out here- http://wanderlustinjapan.blogspot.com/ Also, Baby Skyla is a CDH baby from Austrailia and her mom just e-mailed me her blog- http://skylacdhbaby.blogspot.com/ She was born shortly after Wyatt on Oct. 13th and also just got a g-tube. Check out her story and we wish the best. Also... guess what??? Baby Drew, who was Wyatt's neighbor in the NICU and is now in the same room as Wyatt!!! Drew is doing great and looks super cute!! His mom and I were talking about how tiny they were in the NICU and how much our boys are fighters. It's nice to catch up with families that you meet a long the way. Benji's parents are visiting for the weekend and the above pictures is Wyatt spending time with his grandparents. Wyatt had another good day... I heard transport came to pick him up today to take him back to Mt. Washington... I guess they did not get the message that we were going back on Monday instead. Wyatt is up to 25 ml for his feeds.... almost to his goal of 32 ml.

2 comments:

Anonymous said...: Wyatt is too cute! I am so happy to see him smiling and having fun! All the talk about home sounds wonderful! We will say some extra prayers that happens very soon!

Sue; March 1, 2008 at 11:46 PM
Anonymous said...: He is doing great! Did you like my pictures? Mom and Dad tell you all about it? Dad's got the photo album if you want to check it out.; March 2, 2008 at 8:45 PM

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.