Wyatt James Koger, A Fighter from Birth: Exciting News......

Monday, March 3, 2008

Exciting News......

A view out Wyatt's window

This hospital stuff gets boring sometimes...

I am ready for my dinner!!

Mom-mom and Wyatt...
The pictures above is a view of the dome from Wyatt's hospital room at Hopkins, Wyatt yawning (I think I was boring to him), Chloe's first experience at a Japanese Steak House and my mom holding Wyatt. What a busy day! I wanted to be at Hopkins early so that I could talk to the doctors who examine Wyatt before he left for Mt.Washington. There were two pieces of exciting news today. First, Dr. Carson and Judy, the PA came by to see Wyatt. They decided to keep the flow of the shunt the same since it's working fine Since Wyatt had a CT of his head over the weekend, I asked about the right temporal lobe bleed and Dr. Carson said, "What bleed? I didn't see at bleed in the right temporal lobe." Then he smiled and said, "God is Good!" Can you believe that there is no evidence of this bleed in the right lobe!!! What a miracle!! Wyatt also still had his central line in his chest so before he left, a surgeon came by to remove it. The central line has been our safety net for Wyatt since he has difficult access to his veins. Taking it out is a little scary, but it's one less tube and one step closer to home. Before we left Hopkins, Wyatt and I got to sit quietly in the sunlight overlooking the dome and watching the wind vane move back and forth. It was a very peaceful end to our stay at Hopkins. When we arrived at Mt.Washington around 2:30pm, I asked Wyatt's doctor how long would he be at the Mount... expecting her to say about 2 weeks.... AND.... she said THURSDAY!!!!!!!!!!!!!! Wow!!! I am super excited, but also freaking out because I have a million things to do at home. We have to set up the shift nursing, meet with the equipment company, learn how to take care of his g-tube, feeds, oxygen, and move Chloe into her new room. But we WILL be ready... I have been waiting for this day to come for a long time and I don't want anything to delay it!!! Can you believe that our little boy may come home this week???

7 comments:

Vicki Jensen said...: HOORAY!!!!!!!!!!! This is the post I've been waiting for! I am going to pray like crazy that Thursday is the big day. This is SO EXCITING! I know you're probably nervous but you know Wyatt better then anyone and once he's home he's going to really take off and do great. This means he's one step closer to meeting Jack for a play date too! Our whole family is so thrilled. Be a good boy like always Wyatt and get home soon!
Love
Vicki, James, Jack (and my parents who've been keeping up with Wyatt's journey too!); March 3, 2008 at 10:23 PM
Anonymous said...: God is Good (:), m; March 4, 2008 at 6:27 AM
Anonymous said...: WAY TO GO WYATT!!!!!!! A little "Mom-Mom" bird told me you are coming home this week!!!!! What incredible news!!!!!
I am so very, very happy for you and Mommy, Dadday and big sister Chloe!!!!!
Can't wait to see you!!!!!
Love and super big hug,
Karen :); March 4, 2008 at 7:02 AM
Anonymous said...: Your entry brougt tears to my eyes...I am soooooo excited for you guys. Please let me know if you need anything at all.

Jen; March 4, 2008 at 10:26 AM
Anonymous said...: Me too! Crying like a baby...I haven't cried happy tears in a long time. I'm so excited for you all! Your family's journey these past five months has been so challenging and you all have been so brave and inspiring through it all. Wyatt is coming home! Wyatt is coming home!!! Finally.

Call me, and I'll be there to help.

Love to everyone,
Laura Hankins; March 4, 2008 at 10:33 AM
Anonymous said...: YES! YES! YES! GREAT NEWS!

Julia; March 4, 2008 at 2:36 PM
Gillian Brown said...: I'm delighted you are getting your special guy home!!!You've waited a long time and it'll make life alot easier and more complete!!
All our love Gil and family xx; March 4, 2008 at 3:26 PM

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.