Wyatt James Koger, A Fighter from Birth: Wear Turquoise on March 31st

Tuesday, March 18, 2008

Wear Turquoise on March 31st

It's CDH Awareness Day on March 31st and my friend Vicki made Wyatt this cool bib that says that I am a Johns Hopkins CDH and ECMO Survivor... it's so nice, that I don't want him to spit up on it!! She also made me a T-shirt and sent an iron-on for Chloe. Thank you Jack's mom!!

1 comment:

Anonymous said...: Wyatt cannot possibly look any happier....well, at least no more than Mommy and Daddy!!! Great pictures Gina...I think of all of you everyday and thank you for my CDH ribbon...I have it on my jacket and it reminds me everytime I look at it how heroic these babies are and the struggles that their families have had to face.
Make sure you take lots of pictures after the *bunny* visits!!!!!
Hugs and love,
Karen :); March 19, 2008 at 8:03 AM

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.