Wyatt James Koger, A Fighter from Birth: HOME SWEET HOME!!!!

Tuesday, April 22, 2008

HOME SWEET HOME!!!!

Holding hands......... Chloe did this on her own... I didn't even ask her!!

Giving Wyatt a book to read

Reading together

We arrived home from Hopkins last night around 8pm. Wyatt is happy to be home, but still is in pain. We almost took him back to hopkins today because he was crying in pain, leaning to the right side, and had a little bit of brown residue as we vented him and Wyatt has not a bowl movement since yesterday morning. I called Peggy, the PA from pediatric surgery and she suggested to increase his pain med slightly and give him motrin as well as a glycerin suppository. Well... the pain med worked as you can tell from the pictures above and we are still waiting for that BM!! Wyatt still has his central line in which calls for a heparin flush everyday and once a week dressing changes. I am not thrilled to come home with a central line because of infection, but Wyatt has very difficult access and it's best for him. Hopefully we will not have to return to the hospital again for surgery!!!

3 comments:

Anonymous said...: AW These pictures make me melt! It is so good to see Wyatt home and smiling!!!!!! He really resembles Chloe, they are so perfect. Give Chloe Bear and Wyatt love from Nanny!; April 22, 2008 at 12:42 PM
Unknown said...: So wonderful to see their happy faces!; April 22, 2008 at 4:51 PM
Anonymous said...: I was introduced to little Wyatt from Danielle Stewart, a nurse at the hospital. Just to let your family know that Wyatt and your family have been added to my prayer chain in St.Louis. We will be praying that Wyatt continues to improve.He is one of God's little miracles!!

With love and prayers!
Vicki Reynolds; April 22, 2008 at 9:52 PM

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.