Wyatt James Koger, A Fighter from Birth: Busy Day Yesterday!

Sunday, May 4, 2008

Busy Day Yesterday!

If you click on the link above, you can view more pictures.

Our friends who are the organizers of the benefit came over to visit Wyatt and Chloe yesterday and brought their two kids Dan and Grace. It was so much fun hanging out with them. Wyatt really enjoyed spending time with Dan and Chloe enjoyed spending time with Grace. We did run out of oxygen, so our equipment company delivered liquid oxygen which is suppose to last 16 days on one liter plus many portable tanks. It looks like your prayers are working... Wyatt moved down from 1 liter to 1/2 liter today and his stats are great! The congestion is still there, but I am really hoping it's getting better. I also think increasing the Prevacid to 3.5 mls from 2.5 mls is working- so far, no brown spit up. Wyatt also had the infusion nurse come by yesterday to change his central line dressing. I can't wait to have it taken out because the risk of infection, but we are keeping it in until Wyatt is over his cold. The nurse also said that Wyatt's other incisions look great! Go Wyatt Go! Everyone is napping now, but when they wake up, I think we might go for a walk. Happy Sunday!

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.