Wyatt James Koger, A Fighter from Birth: Danielle's comment

Saturday, June 14, 2008

Danielle's comment

My sister wrote a comment on Skyla's blog and I just thought I would share it... because it's so true....

"From the above comments you can honestly say your little Skyla brought the world to tears. She also brought us hope, empathy, tolerance and admiration. She's amazing! I used to look at Wyatt's bad days and feel so sad for him and tell all the people who asked about him how grave his situation was. As soon as I found Skyla's page, that changed me. Instead of looking at Wyatt's suffering, I would instead look at the happiness that was in his eyes and appreciate the fight that he was putting up. Skyla always seemed happy and not fazed by her million and one obstacles. She seemed ready to conquer anything! Kristy - thank you for taking us on Skyla's journey. The world would have never known her if you didn't share it.

-Danielle
Maryland, USA"

June 15, 2008 12:28 AM

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.