Wyatt James Koger, A Fighter from Birth: A Tribute to Baby Skyla

Friday, June 13, 2008

A Tribute to Baby Skyla

Baby Skyla received her angel wings today. Skyla and Wyatt are both 8 months old born with CDH. Skyla fought to the very end... she is so beautiful and sweet and was always in our prayers. Our hearts go out to her and her family. Wyatt's supporters followed her story from the beginning. Life is just not fair!! Skyla's mother posted a beautiful tribute to her on Sklya's blog. She will always be with us. I just don't know what more to say... :(((

Wyatt had a pulmonary dr. appointment yesterday. Besides Wyatt being super upset, it went very well. We took him off oxygen for a little while and he de-stated about five min. later, so he is not ready to be weaned. His diuretics were discontinued as of Monday!!! So all that leaves is Prevacid and Flovent for his medications!!! He has an x-ray on July 7th and a follow up with his surgeon on July 8th... then we will formulate a plan for surgery if he re-herniated.

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.