I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Wednesday, August 20, 2008
Happy 1st Birthday Jack!
Jack Jensen is one year old today. Jack's parents have been our mentor and friends through our entire CDH experience. Jack had a severe form of CDH and was on ECMO at Hopkins shortly before Wyatt. Jack's parents educated us so much about CDH and gave us the strength and hope for Wyatt's future. Jack and Wyatt shared many of the same doctors and nurses in the NICU and PICU... they even reherniated at the same time (I think the boys planned it that way so that they could see each other!) Jack is a little miracle and his parents are strong advocates for CDH... I know we are not the only family they have touched. There are so many other families around the world that Vic, James, and Jack inspire, support, and care for. Thank you Jack for coming into this world! We love you! Read Jack's Blog Here.
In other CDH news... Baby Will needs many prayers... his veins and artieries are too small to support ECMO and he is currently on the vent. Read his blog for updates.
Welcome Baby Girl Reed to this world!
Another blog that I enjoy to read to Mt. Hope, a family living in the country in Oregon. They live such a simple happy life. The other blogs on her site are interesting too! I got it from Simple Mom blog.
Finally, my sister finally updated her blog with some cute pics of Chloe and her! Check it out!
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