I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Tuesday, February 3, 2009
Crabbing for Cash
I will post about this more, but the nurse is about to arrive and I have to do a few things... so for a highlight, please check out Jack's Blog and Andrew's Blog (the two mom's that are starting the Maryland CDH group with me) for an exciting fundraiser for the Hopkins Children's Center.
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