I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Tuesday, March 31, 2009
Our CDH Awareness Day...
We started off the day by delivering Awareness Ribbons and informational brochures to Mommy's work. While at Mommy's work, Chloe had to tell Big Bird about CDH Awareness and she was Mommy's helper in disturbing the ribbons. Then we went to Chloe's art class and found out that people were surprised that one in every 2,600 live births are CDH babies. Then before going home for nap time, after a stop at the park, we went to visit the Easter Bunny!! This is the first time EVER that Chloe sat on the Easter Bunny's lap (not even Santa Claus has this honor). Chloe also shared CDH awareness with the Easter Bunny. Since it's still cold and flu season, Wyatt stayed home... but hopefully he will have this opportunity next year:))
THANKS TO VICKI JENSEN (JACK'S MOM) FOR MAKING THE SHIRTS FOR US. SHE MADE THEM FOR US LAST YEAR AND THEY STILL FIT!!!
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1 comment:
okay, who was inside Big Bird?!? Was that you Gina? Chloe is certainly turning into a sweet young lady...What beautiful smiles! I think she was just thrilled to have a girl's day out with mommy!!!!
PatV.
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