I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Wednesday, April 1, 2009
Thanks for wearing Turquosie for me:)
Did you know that CDH occurs just as often as Spina Bifida and Cystic Fibroris? The survival rate has doubled in the past 25 years of children born with Spina Bifida and research has enabled children to live fuller lives with Cystic Fibroris. However, the survival rate for CDH has always been 50%- half of all babies die who are born with CDH. With more awareness, education, research, and funding, we can increase the survival rate. Thank you to all the people who wore ribbons and turquoise yesterday to honor Wyatt and all the CDH babies. We truly appreciate your support! Thank you to my friend Teaette and her Mom Linda, as well as her daughter Taylor for wearing turquoise. She is always there for me:)) Thanks Tea!! Now for the rest of you... it's not too late to send in your pictures... dress up your kids, get together with your co-workers.. the week is not over yet!!! Send in your pics to gbkoger@yahoo.com. Check out some cute pics on these blogs...
Baby Carter
Nayeli
Baby Sofie
Baby Owain
Here is an short article that was linked on Sofia's blog about a doctor doing research on CDH- http://www.ksdk.com/news/local/story.aspx?storyid=171206&catid=3
Please pray for Baby Catherine who recently went in for g-tube surgery and a nissen and now had to go in for a second surgery because of complications. Her mom is always so positive! \
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1 comment:
Tejal and I wore out turquoise!
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