Wyatt James Koger, A Fighter from Birth: A Snow Day!!

Monday, March 2, 2009

A Snow Day!!

I asked for family time and I got it!! It's a snow day today... so Daddy went to work, the nurse canceled which just left Chloe, Wyatt, and I!! Chloe wanted to go sleigh riding so I bundled her up and took her outside and I bundled Wyatt up and put him in the stroller... it was an adventure and anybody looking at me would probably laugh. Wyatt's favorite toy in the whole wide world is his spider man. He signs and says more for me to play it over and over and over and over again:))) Today I taught him how to make him play by himself by pressing spider mans foot. Wyatt was so proud of himself!!! Now I hear spider man play all day long. Maybe we should go outside again:)) We have also been practicing standing and he does it while I hold him and then he claps. We are making such great strides in the past few days! Tomorrow will be another adventure... we have to leave the house at 6:30am with Wyatt and Chloe for an appointment at Hopkins with his surgeon then be at the pediatricians office at 11am for a wellness check for Chloe and Wyatt's RSV shot, and then I go to work for the other half of day. I better enjoy this quiet family time now.

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.