Wyatt James Koger, A Fighter from Birth: CDH News

Sunday, May 3, 2009

CDH News

Marion and Jason, lost their daughter from CDH after a 22 day fight. Marion posted on her blog a fund raiser that will help families similar to them. If you purchase a t-shirt for $16.00, it will pay for a family to stay at the Parker Reese House. Click on Baby Addison's Blog to learn more how you can help.

Here is an e-mail from Marion-
"I lost my daughter, Addison, to Congenital Diaphragmatic Hernia ("CDH") on March 11, 2009 after 22 days of fighting. While she was in the ICN, Jason and I stayed in a house similar to Parker's House out in San Francisco, CA. It really makes a difference to have a place to call home when your entire life has been turned upside down. I am helping raise money for the Parker Reese Foundation by selling t-shirts. Each t-shirt sold sponsors a family for one night at Parker's House.

Imagine caring for an entire family by simply buying and wearing a t-shirt. That’s what “Sponsor a Night” is all about. Purchase your $16 t-shirt today and wear it to show your support for the families staying at Parker’s House. For more information on The Parker Reese Foundation and Parker's House, please visit www.cdhawareness.net."

Wyatt has his big day at the hospital tomorrow. We are so lucky... we get to stay there overnight:)) Monday he will have his MRI and Tuesday will be the upper GI.

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.