Wyatt James Koger, A Fighter from Birth: Home Sweet Home

Tuesday, May 5, 2009

Home Sweet Home

Everyone was so nice to us but we are very thankful to be home!!!!!!!!!! Here is the plan... there is no plan. The surgeons meet every Wednesday. Dr. A. will present Wyatt's case to the GPS group and they will decide. Will they be conservative and elect not to do surgery or repair the hiatus hernia now before it gets worse? I am always a advocate for no surgery, but I am also at the point where I just want everything repaired and move on. So I will leave it in the hands of the very talented surgeons. I am more concerned about the fluid that he has in his chest and abdomen. Tomorrow I will be calling the pulmonologist to see if we should re-start his diuretics and will be calling the neurosurgeon to see what the cyst of fluid is all about. So the good news is that we have more information about Wyatt and he did not have a complete reherination.
Please pray for Wyatt's buddy Drew. He is back in the hospital for low sodium levels and fever. We are also happy to hear that Baby Sofia is home and happy and that the surgery went really well.

2 comments:

Liz and Shane said...: Glad you are home. I will be praying that the fluid goes away. I hope that if he does require surgery it goes well. Praying for Wyatt's buddy Drew.
Wyatt is such a little trooper!; May 6, 2009 at 12:27 AM
*super dude and super dog* said...: He looks way too happy to be in the hospital! I love the picture of him "standing" with one sock on.; May 7, 2009 at 5:24 AM

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.