Tuesday update from the hospital....

Well... Wyatt and I are just hanging out in the hospital... he is finally napping. We have no plans to go home yet:((( We are in my favorite room across from the nurse's station and we are the only people in it. It's not very busy. Wyatt is done with all his tests. The MRI did change his shunt setting from 1.5 to 2.5, so neurosurgery had to re-program him back to the original settings.

Here is what the MRI report said-

Chest- "Moderate dependent segmental atelectasis right side greater than left. Trace of righ pleural effusion, mild shift of the mediastinum to the left. Left lung is slightly hypo plastic. Small to moderate sized hiatus hernia.

Abdomen- No definite recurrent diaphragmatic hernia. Artifact in left hemithorax from air results in poor evaluation of diaphragm. GT is noted, liver, gall bladder, adrenal glands, pancreas, kidneys, and spleen are unremarkable. Mild ascites.

Pelvis- There is a 2.3 x 1.3cm cystic lesion in the left adnexa, i.e. along pelvic sidewall which contains a fluid- fluid level. Conus medullaris terminates at L1.

In laymen's terms- his stomach protrudes through the diaphragm when full (hiatus hernia) and he has fluid in his lungs and abdomen. The fluid from his abdomen is probably from the shunt.

GI Series-
This test was traumatic for Wyatt. They made him lay on his side, chest, tummy, (I thought they were going to make him stand on his head next!!) and took pictures as barium was injected through his g-tube (first they tried mouth). It showed A LOT of reflux up the esophagus and the stomach going into the chest.

Blood Work-
White blood cell count 20,000 (normal range- 6,000-17,000)
Platelet Count high 554 (normal range 150-350)
Mean Corpuscular Vol (Size of red blood cells) high 89.5 (normal is 70-86)
Dr. K, the hematologist just came by and is going to look at his slide of a smear of blood. Wyatt's red blood cells are a little larger than normal. He said that this may mean nothing and that Wyatt's immune system is in overdrive and his numbers are high because his body is healing from a traumatic birth defect.
Everything else normal.

Nutrition Consult- Wyatt is a growing maniac. He is currently between 25 percent-50 percent for weight and 50 percent for height. Six months ago he was barely on the charts... so he is growing and doing great! He requires 105-110 cal (??) for his age range and he is currently getting 118. He can be off his food for 4 hours a day. We don't really keep track... we just make a guess so having a little wiggle room to leave him off more is good. We are trying to beef him up for a possible surgery.

What does all this mean???????? I have no idea... we are waiting for a plan. Wyatt is his normal self and you would never know that even though he acts well and is well... he was a very sick baby and it's taking a LONG time for him to recover. He is still sick but doing much, much, better and making progress.

So we are just sitting here waiting for the plan. Benji spent the night at the hospital last night and I arrived early this morning. He took Chloe to her first "drop off with out parents" Tumble Kicks for the first time. I was so nervous because we did the Mommy and Me class all year, but I thought this time we will leave her there for the 45 minute class to get her ready for preschool next year. She did awesome!! The instructor e-mailed me and told me she was very active and fit right in. That's my girl!! I really appreciated that e-mail since I am stuck at the hospital.