Wyatt James Koger, A Fighter from Birth: Feeling better...

Sunday, June 28, 2009

Feeling better...

Wyatt is feeling a little better. It has been one full week since he has been home from the hospital and today is the first day he has not had any pain medication!! He seemed happy most of the day except if he wanted to take a nap. His stereo strips on his incision are falling off and it seems like it is healing nicely. I gave him a bird bath today (since we can not get the incision wet) and cleaned his g-tube really good. Good news... it looks like March 31st could possibly be declared National Diaphragmatic Hernia Day- Read Sofia's blog for more information!! Unfortunately someone has written some really bad stuff about March 31st being declared as CDH Awareness- check it out here . If you want to see how the CDH community is fighting back... just read the comments. I feel really sorry for the author Peregrin Wood. How could anyone be againist CDH awareness. Little research is done and half of all babies die from it. It happens in 1 in every 2,500 births a year and is just as common Spina Bifida and Cystic Fibrosis. Who would be againist creating more awareness??? only good would come of it by creating awareness.

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.