Wyatt James Koger, A Fighter from Birth: Letters for CDH.. Are you ready for July 15th?

Tuesday, June 16, 2009

Letters for CDH.. Are you ready for July 15th?

July 15th is a very important day for all CDH families and their fans. It is when the community is going to make the WORLD aware of CDH. Tons of blue envelopes will be mailed to the Ellen show and e-mails will be sent to Oprah. Please read about it on the Letters for CDH website. Even if you do not have a child with CDH, I still encourage you to participate. Thank you again for all your support.

Taking care of Wyatt on steroids can be exhausting!! Just ask our nurse, Susan:)) So far today, he skipped his nap and when I came home from work a plant, the stand, dog food bowl and water bowl were on top of the kitchen table to prevent Wyatt from knocking them over:)) It's about 10 pm and he finally went to sleep. He is a very happy, energetic little guy. Speaking of little guy, he was just weighed today and he is currently 24 lbs, 7 oz. He gained about 5 oz in a week:))

4 comments:

Jen said...: Sounds like Hurricane Wyatt is keeping everyone on their toes!!; June 17, 2009 at 12:09 AM
Unknown said...: Tomorrow (Thursday) is Wyatt's big day. I want you all to know that we are sending lots of postive energy your way. We know Wyatt will amaze us, like always, with his bravery and resiliance. GO WYATT!

Lots of love,
The Hankins; June 17, 2009 at 4:22 PM
Anonymous said...: Hi Gina! I googled your blog and found it! :) GOod luck with everything tomorrow, I'll be praying for Wyatt and for the rest of the family! ~ Laura Hoffman; June 17, 2009 at 10:16 PM
Stacy K said...: Wyatt, I am praying that you have a great day tomorrow. Glad mommy can send tweets. I will gladly stop working to check on you :) Go Wyatt, Go!!! Be the strong little boy that you have shown us you are.
Love, Stacy; June 17, 2009 at 10:31 PM

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.