Wyatt James Koger, A Fighter from Birth: Hopkins X 2

Wednesday, August 12, 2009

Hopkins X 2

Yesterday was Wyatt's appointment with his surgeon to get a new g-tube. His surgeon travels to Africa for the month of August to give free surgeries. I knew this, but the receptionist said that he WILL be there on Aug. 11th. I even questioned her about it and she said he will be there. I even got a confirmation letter. Since I had to work yesterday, Benji and Wyatt's nurse Susan drove to Hopkins during rush hour, which takes about double the time. Wyatt now cries when we drive in the parking garage and in the waiting room... he knows what he is in for and it's so sad. Guess what... Dr. A is out of the country!! so no new g-tube. The G-tube he currently has is falling apart, the plugs broke off, so I was not happy to hear this. So I called and got us in clinic today.... I had the pleasure of driving to Hopkins with my two kids by myself, which was an adventure, to finally get a new g-tube (button). The Hopkins staff were super nice about it and did not let us wait too long.

1 comment:

*super dude and super dog* said...: I just realized (or maybe I forgot) that Carter and Wyatt's birthdays are so close. Only 2 days apart!

I could feel the frustration and anger building in myself reading your post. I'm glad he was able to get a new button though. I hope you are fully prepared to answer all of my questions on it after Carter gets his :); August 13, 2009 at 1:24 AM

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.