Wyatt James Koger, A Fighter from Birth: Keeping busy in the warm, cozy, indoors during the blizzard.

Wednesday, February 10, 2010

Keeping busy in the warm, cozy, indoors during the blizzard.

We got about 50 inches of snow in the past week. Today was a blizzard and all vechicles except emergency vechicles were ordered off the road, even the snow plows because of white-out conditions. You could only really see the house next to your house and the snow was blowing sideways all day long, everything was completely white. So we have been stuck in the house since last Friday (another blizzard) and it looks like we will be stuck a little bit longer. What to do??

Besides being snowed in....we decided to cancel cable and use an antenna THIS week (we made this decesion before knowing it would snow this much!! ) What a week to make that transisiton, but we have been doing pretty good with out cable. I actually like it. We still need to tweek the antenna, but we get three stations- ABC, Fox, and PBS. We also have TiVo (which I can't live with out) and pay the $9.00 month Netflix which we can stream to Tivo. Netflix has everything the kids had before on Disney and cable, plus plays all you tube videos and we store all our ipod music on there and will soon load the dvds that we own on tivo. I feel like we really are NOT missing anything. PBS has wonderful concerts and the kids are not asking for the shows they use to watch. They really can watch less TV and they watch no commercials. It's wonderful!!! However, we have to stay busy by playing duck, duck, goose (which you see below), and much more!

Dressing Wyatt up as a princess

Cuddling while we watch a concert on PBS. Chloe said, "Mommy, did you know a banjo has six strings?" She is already smarter than me!!!

Tickling!! Wyatt starts it by saying, "tickle, tickle"

Looking at photo albums of friends, relatives, and themselves. They ask questions about "when they were a baby" which was sooooo long ago in their mind.

Baking bread. We stopped buying bread about a month ago and now bake our own. Our standard is honey wheat bread, but since the blizzards we baked cinnamon raisan, banana chocolate chip, and today the two bakers made garlic herb and honey wheat. I don't have to worry about running out of bread! Chloe chooses to bake in her princess dress and sunglasses.... doesn't everyone???

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.