Let’s throw a curve ball and have brain surgery

Well today was very busy.  Wyatt had his scoliosis x ray series and had to stand independently holding a bar for it.  Then he had the shunt series where dye was injected by a needle into his shunt and a series of pictures were taken over 90 minutes.  This was so painful for Wyatt because he had to lay on a stiff board for so long.  He was nervous about the needle in his head, however he was positive the entire time. He truly was brave and tolerated excruciating pain.  I had to hold back my tears because he was being so strong mentally and physically.  When we returned, the Physical Therapist was waiting for him to work him hard- walking and climbing steps.  The entire day was mentally draining.  This evening we learned that the shunt is not operational anymore and that the dye traveled to his abdomen- meaning that scar tissue formed a “tube” around the tube.  When the tube disconnected, the scar tissue remained.  This is not good because the scar tissue could cause a blockage.  Therefore, Wyatt is an add on to the neurosurgery schedule for tomorrow for shunt revision and a placement of a tube, pushing discharge back from tomorrow until Wednesday or Thursday.  This boy is the definition of perseverance, positivity, and staying focus doing hard, scary things.  He is an inspiration to me and adds a perspective to how I handle situations and interact with people.  I can’t imagine going through a very complicated painful back surgery and excited to come home then hearing the news that neurosurgery will be operating on him tomorrow.  

Conquering steps!!!

90 minutes on his back in this machine after getting a needle in his head. 





New room and new view!


Our new view- the Inner Harbor