Wyatt James Koger, A Fighter from Birth: Staying steady

Wednesday, June 7, 2023

Staying steady

Wyatt is holding steady. He is progressing as expected for major surgery. He is still in the PICU and trying to figure out pain control and low blood pressure. He feels beat up. Very groggy and it hurts when he moves. His incision spans from the bottom of his neck to his tail bone. Under his graspy soft voice, he reminded me it’s hospital bingo day. He won in the 3rd round!

I’m dealing with a first. It’s the first time Wyatt is in the hospital with his own debit card, Amazon account, phone, etc…. If you know Wyatt he loves to buy stuff! Everyday I come home, there’s a new package at the door that he ordered!!!! Oh My!

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.