I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Thursday, June 8, 2023
Bump in the road
Wyatt is still in the PICU and is dealing with issues after a major surgery such as fluid retention, low red blood cell and hemoglobin counts, and lethargic even though pain meds are at a minimum. Something that came up on a X-ray was that his shunt tubing disconnected. This adds another hurdle and we are consulting with neurosurg. It looks like it was disconnected back in December when the last images were taken. This is good and bad news. He may not need it anymore. So Wyatt is about to have a brain MRI this afternoon. He just finished with an ultrasound. After all the testing is done, I’ll have more answers. Thanks for your continued prayers. Everything is always so much harder for this kid in all aspects of life.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment