I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Wednesday, May 22, 2024
Bingo Day!
Every Wednesday at Hopkins is hospital bingo. Wyatt looks forward to playing anytime he is there on a Wednesday! I look forward to Thursdays for free lunch (Panera, Little Italy, etc…) and mini back massages for the parents. Last week, both were missed because of the state Wyatt was in. He had no desire to play Bingo. Today is a different story, he played and won 3 rounds! (You play from your hospital bed, watch it on TV, and call it in if you won- then they announce you as a winner on TV- if you didn’t win any rounds- you usually get something for hospital bingo!! ). It looks like the shunt will be placed next week- infectious disease gave their blessing- then home. Neurology came by today to look at his weak left arm and he had is last drain removed from his back- the deep one. I am home for a couple days to work and a couple doctor appointments myself. It’s strange being away from the hospital. No pics because Benji is with him 😂
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