I know Wyatt feels better- he is putting his hand up! No pics!!
I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Tuesday, May 21, 2024
Rest Day
Today was mainly resting for Wyatt. Our next steps after the infection is completely cleared is determining if he needs a new shunt or not OR a procedure that puts a little hole in the ventricle for the fluid to drain. I really don’t want the shunt but if it’s necessary, then we will absolutely pursue that route. My Dad had an appointment today at Hopkins. The rehab dropped him off, I went over to the next building to attend his appointment and then got him lunch and brought him to Wyatt. Today he got his bandage removed from his back- it looks good! He has about 50 staples in it. He also got a heart echo.
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