I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Wednesday, May 15, 2024
Update
Today I took a break from the hospital and Benji held down the fort. I went to work and my friends brought wine, pizza, and cupcakes over in the evening. Seeing my work friends and hanging out with my best friends was just perfect! Wyatt had a 4am MRI to check pressures in his head. The MRI was unchanged which is good. An additional antibiotic was added to kill the bacteria on the hardware in his body. He has been coughing and had a chest xray to check for pneumonia. He was also swabbed for pneumonia- results are pending. Chloe made these fun Shriek cake pops too! She got her nails done and we are getting prom ready!!!
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