Wyatt James Koger, A Fighter from Birth: The sparkle in his eyes are making a comeback!

Thursday, May 16, 2024

The sparkle in his eyes are making a comeback!

Thank you for the OUTPOURING of prayers and support from our Calvert Hall community, our family, friends, coworkers, our community where we live. It’s amazing. This by far has been one of the toughest hospital stays since he was a baby. Being one of the central beds in the ICU made me realize the severity of our stay. I was very worried about Wyatt, however, today when I arrived at the hospital this afternoon, he was sitting in the chair, having conversations, negotiating with the nurse, rolling his eyes at me. It truly was one of the happiest moments for me. This is a vast difference of him being lethargic, and just blank stares out in space. Some good things to celebrate- we moved rooms down the hall in the ICU, which means we are not as critical, I had them turn Wyatt’s bed towards the window during our move, his white blood cell count is normal, they switched his pain meds from a pump to PRN oral, they removed the wound vac and one of the back drains. The CSF fluid coming from his brain is not as cloudy or bloody and is draining much less fluid, he ate salmon and carrots today! He still has a long way to go, his platelet count is still high, his left arm is still weak and in pain and his infection still needs to be completely cleared. We are hoping he will no longer need his shunt. We are going to trail off next week- my hope is no shunt. Also, a neuromuscular doctor will be visiting him tomorrow to determine why his left arm is in pain. His chest xray is remarkably clear compared to yesterday but the radiologist noticed a reherniation of his bowel. The PICU doc stopped all food intake and general surgery will be visiting him on Friday. This was noted in a CT scan in June, but after consulting with his surgeon in Florida, it was determined that he has a high diaphragm. So they added back his food but gps will still be visiting. One thing about Hopkins is that no stone is unturned. They involve any specialist that is needed. Wyatt is getting a complete tune up! Keep those prayers coming. Today was a good day.

Checking all those texts you sent- THANK YOU 🩷

Switched his bed from facing the door to being able to look out the window.

Today was Chloe’s last day of classes! Kindergarten vs last day of high school.

No comments:

Post a Comment

Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.