I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Friday, March 21, 2008
Neurosurg check up
Today we saw Dr. Carson and his PA Judy for a post-op neurosurg check up. It was great! They were very pleased how Wyatt is progressing and Wyatt was also showing off how he rolls over half way. They decided to increase the flow of the shunt by moving it from 2.0 to 1.5. This is done by putting a magnet on Wyatt's head (like a compass). Dr. Carson said in years back, you would need surgery to change the setting, but now it's so easy to do with a magnet. Also, our awesome pediatrician got us an appointment with the GI docs on Tuesday. We originally had an appt. in May, but our pediatrician thought it would be better to get in sooner, so he e-mailed them and we are in!! Wyatt enjoyed his visit to Hopkins today... he looked all around and was all smiles! Tomorrow is Chloe day... we are taking her to an Easter Egg hunt and then to the Circus!!!
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1 comment:
Good job Wyatt!!! Mommy should have been a nurse!!
I hope Chloe has a fun day as I know you are spending the day with Mom-Mom!! Don't tucker her out too much!!!
Happy Easter!!
Karen :)
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