I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Saturday, August 30, 2008
Update on surgery
The OR nurse just updated us that Wyatt is doing fine. Dr. Lau has him on his side and opened and they are just starting the repair. It took a while to start because they could not find IV access so they had to put in a central line. So it looks like a long night ahead of us because they also have to make a second incision to repair the obstruction. Thank you for all your support and prayers.... we really appreciate it and your e-mails and comments make us smile as we are sitting here in the empty waiting room:)
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4 comments:
Gina and Benji,
We are so sorry that you and Wyatt are having to go through this. Seemed like things were going so well. We will keep you in our thoughts and prayers, stay strong. Wyatt's name may mean brave, but you live bravely every day, too! That's why you are his mom. To teach him bravery!
Pat and Walt
Everyone is praying for Wyatt. He will see him through this hurdle also. Chloe said a special prayer for Wyatt before she went to bed. She really loves her little brother., m
I just realized that this was the day of Jack's big surgery last year. He did great so it's a lucky surgery day. Just think in 20 years they can compare notes and will probably go out for a beer together to celebrate their successful surgeries on Aug 30th!
Vic
We will be thinking of and praying for you guys from the Childrens Mercy NICU. Hopefully this patch will be the "charm"
Brian, Cassi, and cdh baby Elli
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