Wyatt James Koger, A Fighter from Birth: Snow Day!

Monday, January 19, 2009

Snow Day!

Chloe inside playing with her snowsuit on... she refused to take it off!!

First... Wyatt is fine. No more brown residue and he has been very happy. I have no idea was that was an isolated incident... but so far we are ok. Tomorrow he has a hearing appointment and on Thursday he has a pulmonary appt. In between he has two therapy sessions. I also have a nursing review meeting and am working four days. It's a busy week! Today it snowed less than an inch.. however we have not received anything this year, so we took full advantage of it. Today, Daddy and Mommy took her to tumble kicks (she thought it was special that we both went with her together}. After Chloe woke up from her nap, we went outside for some sleigh riding and snow angels. Chloe loved it and she especially liked make number 8's in the snow by running in two circles side by side. She created this game herself!! She loved being in her snowsuit so much than she would not take it off until bed time!! As you can see in the picture above, she played all night wearing her snowsuit! Last year, we had one snow day together and we enjoyed the mommy-daughter bonding so much. I remember it so clearly because it was one of the few days I stayed home from the hospital. Chloe really enjoys our time together and I hope it stays that way:)

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.