I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Thursday, February 26, 2009
Busy Day...Wyatt is doing better
Wyatt is doing better today. He is just back to his old self getting into everything like throwing things over his crib, pulling wires, and talking up a storm. His last Motrin dose was this morning at 9am and he is fever free. I asked to go home since everything that is getting done to him can be done at home but the docs wanted to wait 48 hours to see what the cultures grow. They are investigating into Meningitis. They consulted with Neuroserug but they said Wyatt isn't exhibiting any symptoms of it. So that is the main reason we are waiting around for another day to rule out the serious conditions. We were also able to get his Mexiform strips for his ECMO scar and we have a consult with our GI doc about his current medications. One good thing about coming to the hospital is that Wyatt gets a complete check up! We have a private room and one of us is here with Wyatt at all times. Thank you for all your prayers.
Today, I sneaked away from the hospital to take Chloe with my parents to see Dora at the Hippadrome. She had a great time and it was a special day for all of us! We then stopped at Lexington Market for lunch... which is not a good place to take a 2 year old since it's so crowded and has little seating... but it was a nice get away from the hospital.
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2 comments:
Hang in there Wyatt and get better soon so Mommy and Daddy can take you back home. Get some rest, I'm sure that you need it. Glad you got to get to Dora and spend some time with Chloe. Thinking of you all often. I was so surprised to check up on Wyatt tonight and see he was back at Hopkins. Praying for his quick recovery!
Stacy
Oh my gosh! I haven't checked in a few days and had no idea Wyatt is sick. I'm so glad he's doing better and hope you'll be home soon.
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