Wyatt James Koger, A Fighter from Birth: Letters for CDH....

Tuesday, April 21, 2009

Letters for CDH....

Kellie, Carter's Mom had a great idea. Sadly another baby lost his battle with CDH today- Kaden Alex Kuehl. He fought hard for 17 days on ECMO and was doing great when he got off ECMO until recently. His family is in our prayers. Kellie said exactly how I was feeling from her Angry post. and came up with a wonderful idea to take action!! She formed a blog about her idea so go visit the "idea" blog and show her your support whether you are a CDH parent, a friend of a CDH baby, or just a complete stranger. If you know Oprah... Kellie would also like you to tell her about this idea. We need to increase the survival rate and share CDH with the world... It's not fair that babies that fight so hard like Addison, Maxton, and Kaden lost their battle with CDH. Please visit their blogs to show your support and help Kellie's idea become a reality.

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.