Wednesday, March 30, 2011

CDH Awareness Day- March 31st


Thursday is CDH Awareness Day.  Wear turquoise in support of CDH Awareness in hopes that one day doctors/researchers find a cure and take the survival rate from 50% to 100%.  For now, because most CDH babies receive numerous blood transfusions, you can give blood.  Here in our household, we have a shirts picked out and ribbons made for the BIG day!!!

Here are some facts so that you can help spread awareness:

1.The survival rate for CDH babies runs at 50%. Approximately 1600 births a year; 800 babies survive.

2. CDH occurs in approximately 1:2500 births

3. There is no known cause for CDH.

4. There is no way to determine if your CDH baby will or will not survive. Some babies that have severe CDH survive, while other more mild cases do not.

5. There are several types of CDH with the left sided being the most common (this is where our case falls).

6. Many families have never heard of CDH until they are diagnosed with it.

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