We go forward and backward and hopefully we are going forward again and remaining that way. Just when I thought we were on the road to recovery, we got the news (in the middle of prom stuff going on) that Wyatt’s external drain stopped working. It wasn’t draining for days and Wyatt seemed fine. We all thought- Wow! This is great he will be able to come home with no shunt! Well that still may be true, but he developed bad headaches and after two 4:30am MRI’s it was determined the drain is broke! Saturday morning, Wyatt went into the OR and had a new one placed. It was the first operation I wasn’t there for. It’s draining and working now.
Another development, an incidental finding with all this imaging is that they think he reherniated! This was also brought up last August and we discussed it with Dr. Kay’s in Florida and at that time it was determined he has a high diaphragm. It appears he reherniated but actually hasn’t. Wyatt’s body shape has changed dramatically since March 29th so he just had a CT scan to determine if he reherniated or not.
The neuromuscular doctor came by to consult about the pain and weakness in Wyatt’s left arm which started immediately after the March 29th surgery. The doctor took a safety pin and poked his face and up and down his arm. It appears the nerves under his arm were stretched and it will take a long time to return back to normal. He will be followed outpatient by neuromuscular and go through some more testing to find the true cause and hopefully a treatment plan.
His body has been through so much… I hope and pray it’s smooth sailing and healing.
While Wyatt was prepping for another surgery on Saturday morning to repair the drain, his sister was prepping for the NDP Senior Prom.
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