CDH Parent's Group here we come!!!!!

Today I drove to Hopkins, not to visit Wyatt in the hospital, not for a doctor's appointment, but for a meeting that Vicki Jensen (Jack's mom) arranged with Wyatt and Jack's surgeon, Dr. A, Dr. B (the director of maternal fetal medicine, Ginny a genetic counselor, and Andrew's mom Tracey. Drum roll please.... We are forming a CDH Parent's Group with complete support from Hopkins with the hope to expand to all of Maryland to support Children's Hospital in DC as well. Who would of ever imagine that I was lucky enough to meet other moms with similar, but different experiences and earn the respect of Hopkin's doctors to take time out of their busy schedule to meet with us and support us. The past year has changed my life and I am eager to "give back" to the CDH community and hospital that changed our lives. Click here to read Vicki's account of the day. By the way... Jack is cute as ever and was so adorable through the meeting. Wyatt did not attend the meeting and was happy at home playing on his ice cream truck which he moves backwards across the room with his feet! Tomorrow Benji is taking him to his hearing test while I go to work! This time last year, was very different to this time this year... I returned to work after giving birth to Wyatt, Wyatt was rushed back to the PICU at Hopkins from Mt. Wash, and it was determined that he needed a shunt and a g-tube. oh.. and Chloe got RSV this time last year! The year started off bumpy... but the meeting today helped me realized how far we have come! Driving into the parking garage for a good thing was a great feeling!